Cohort name *


    Acronym *


    Cohort type *

    General population-based cohortsNeurodegenerative disease-specific cohortsRare neurodegenerative condition


    Participant type *

    No diagnosisAt risk diagnosisCondition diagnosed


    If disease-specific *

    Alzheimer's diseaseVascular dementiaFrontotemporal dementiaMotor neurone diseasePrion diseaseParkinson’s diseaseLewy Body diseaseHuntington’s diseaseSpinocerebellar ataxia (SCA)Spinal muscular atrophy (SMA)Mild cognitive impairment (MCI)Subjective memory complaints (SMC) or subjective cognitive decline (SCD)Other/rarer dementias/NDs not listedType of dementia/ND not specified


    Recruitment period *


    Sample size at recruitment *

    0 to 4,9995,000 to 9,99910,000 to 19,99920,000 to 49,99950,000 to 99,999100,000 to 499,999500,000+


    Estimated current sample size *

    0 to 4,9995,000 to 9,99910,000 to 19,99920,000 to 49,99950,000 to 99,999100,000 to 499,999500,000+


    Age at recruitment *

    0 to 910 to 1920 to 3940 to 5960 to 100


    Gender *

    Male OnlyFemale OnlyMale & Female


    Abstract *

    Please provide a short description of the cohort, its key aims and if there was any cohort refreshment. Please include information on the number and frequency of data collection events, type of follow up (e.g. solely through record linkage) and cohort distinguishing features (e.g. availability of information on childhood infection or geographic isolated area).


    Country *


    Institution name *


    Website *


    Principal investigator *


    Contact email *


    Contact telephone number *


    Funders

    (core support)

    Variables Collected

    Brain related measures

    Yes    No

    Mental Health

    YesNo

    Cognitive function

    YesNo

    Behaviour

    YesNo

    Neurological

    YesNo

    Functional rating

    Yes    No

    Individual psychological

    YesNo

    Individual physiolgical

    YesNo

    Caregiver

    YesNo

    Anthropometric

    Yes    No

    Height

    YesNo

    Weight

    YesNo

    Waist circumference

    YesNo

    Blood pressure

    YesNo

    Waist circumference

    YesNo

    Physical

    Yes    No

    Cardiovascular

    YesNo

    Respiratory

    YesNo

    Musculoskeletal

    YesNo

    Hearing and Vision

    YesNo

    Reproductive

    YesNo

    Biological samples

    Yes    No

    Blood

    YesNo

    Urine

    YesNo

    Saliva

    YesNo

    Microbiome

    YesNo

    Cerebral spinal fluid (CSV)

    YesNo

    If CSF was collected, is biomarker available

    YesNo

    Other

    YesNo

    Genotyping

    Yes    No

    Gene screening

    YesNo

    Brain imaging

    Yes    No

    Magnetic resonance imaging (MRI)

    YesNo

    Magnetic resonance spectroscopy (MRS)

    YesNo

    Positron emission tomography (PET) – fluorine–18 flurodeoxyglucose (FDG)

    YesNo

    Positron emission tomography (PET) - amyloid

    YesNo

    Magnetoencephalography (MEG)

    YesNo

    Electroencephalogram (EEG)

    YesNo

    Single photon emission computerised tomography (SPECT)

    YesNo

    Brain banking

    Yes    No

    Consent for brain donation

    YesNo

    Lifestyle

    Yes    No

    Smoking

    YesNo

    Physical activity

    YesNo

    Dietary habits

    YesNo

    Alcohol

    YesNo

    Socio-economic

    Yes    No

    Occupation and employment

    YesNo

    Income and finances

    YesNo

    Family circumstances

    YesNo

    Housing and accommodation

    YesNo

    Education

    YesNo

    Ethnic group

    YesNo

    Marital status

    YesNo

    Informal support

    YesNo

    Unpaid care

    YesNo

    Health service utilisation

    Yes    No

    Formal health and social care service utilisation – including private care

    YesNo

    Files

    Links