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Cohort Acronym
ParkWest

Cohort type
Neurodegenerative disease-specific cohort

Disease
Parkinson's disease

Participant type
Condition diagnosed

Profile
Recruitment Period 2004-2006 
Sample size at start or planned sample size if still recruiting 212  
Estimated Current Sample Size 0 to 4,999 
Age at Recruitment >18   
Gender Male and Female 
Abstract

The Norwegian ParkWest study is a prospective population-based longitudinal cohort study of patients with incident Parkinson’s Disease in Western and Southern Norway, with a total base population of more than 1 million inhabitants. The initial cohort comprised of 212 newly-diagnosed and drug-naïve individuals with suspected Parkinson’s disease, who were followed with standardized clinical examinations every 6 months. More comprehensive assessments, including neuropsychological and behavioural evaluations, were conducted at baseline and 1-year of follow-up, and at 2-year intervals thereafter. Currently, study participants are in the 10th year of follow-up. About 110 patients are still in the study.

Last update – 10/04/2017

 
Country Norway 
Contact details
Institution name Stavanger University Hospital 
Principal Investiator (PI) Professor Guido Alves|Professor Ole-Bjorn Tysnes 
Contact email Email: nkb@sus.no|algu@sus.no| PI Email: Ole-Bjorn.Tysnes@uib.no 
Contact phone number +47 51 51 52 18 
Address The Norwegian Centre for Movement Disorders
Stavanger University Hospital
PO Box 8100
4068 Stavanger
Norway 
Funders (Core support) Norwegian Parkinson Research Foundation
Western Norway Regional Health Authority
Research Council of Norway 

Variables Collected

Brain related measures: Behaviour, Cognitive function, Mental health, Neurological
Funtional rating: Caregiver, Individual physiological, Individual psychological
Anthropometric: Height, Weight
Physical: N/A
Biological samples: Blood, Cerebral spinal fluid (CSF)
Genotyping: Gene screening
Brain imaging: Magnetic resonance imaging (MRI)
Brain banking: Consent for brain donation
Lifestyle: Alcohol, Smoking
Socio-economic: Education, Ethnic group, Family circumstances, Housing and accommodation, Marital status, Occupation and employment, Unpaid care
Health service utilisation: N/A
 
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