Cohort name *

Acronym *

Cohort type *
General population-based cohortsNeurodegenerative disease-specific cohortsRare neurodegenerative condition

Participant type *
No diagnosisAt risk diagnosisCondition diagnosed

If disease-specific *
Alzheimer's diseaseVascular dementiaFrontotemporal dementiaMotor neurone diseasePrion diseaseParkinson’s diseaseLewy Body diseaseHuntington’s diseaseSpinocerebellar ataxia (SCA)Spinal muscular atrophy (SMA)Mild cognitive impairment (MCI)Subjective memory complaints (SMC) or subjective cognitive decline (SCD)Other/rarer dementias/NDs not listedType of dementia/ND not specified

Recruitment period *

Sample size at recruitment *
0 to 4,9995,000 to 9,99910,000 to 19,99920,000 to 49,99950,000 to 99,999100,000 to 499,999500,000+

Estimated current sample size *
0 to 4,9995,000 to 9,99910,000 to 19,99920,000 to 49,99950,000 to 99,999100,000 to 499,999500,000+

Age at recruitment *
0 to 910 to 1920 to 3940 to 5960 to 100

Gender *
Male OnlyFemale OnlyMale & Female

Abstract *
Please provide a short description of the cohort, its key aims and if there was any cohort refreshment. Please include information on the number and frequency of data collection events, type of follow up (e.g. solely through record linkage) and cohort distinguishing features (e.g. availability of information on childhood infection or geographic isolated area).

Country *

Institution name *

Website *

Principal investigator *

Contact email *

Contact telephone number *

(core support)

Variables Collected

Brain related measures Yes    No
Mental Health YesNo
Cognitive function YesNo
Behaviour YesNo
Neurological YesNo
Functional rating Yes    No
Individual psychological YesNo
Individual physiolgical YesNo
Caregiver YesNo
Anthropometric Yes    No
Height YesNo
Weight YesNo
Waist circumference YesNo
Blood pressure YesNo
Waist circumference YesNo
Physical Yes    No
Cardiovascular YesNo
Respiratory YesNo
Musculoskeletal YesNo
Hearing and Vision YesNo
Reproductive YesNo
Biological samples Yes    No
Blood YesNo
Urine YesNo
Saliva YesNo
Microbiome YesNo
Cerebral spinal fluid (CSV) YesNo
If CSF was collected, is biomarker available YesNo
Other YesNo
Genotyping Yes    No
Gene screening YesNo
Brain imaging Yes    No
Magnetic resonance imaging (MRI) YesNo
Magnetic resonance spectroscopy (MRS) YesNo
Positron emission tomography (PET) – fluorine–18 flurodeoxyglucose (FDG) YesNo
Positron emission tomography (PET) - amyloid YesNo
Magnetoencephalography (MEG) YesNo
Electroencephalogram (EEG) YesNo
Single photon emission computerised tomography (SPECT) YesNo
Brain banking Yes    No
Consent for brain donation YesNo
Lifestyle Yes    No
Smoking YesNo
Physical activity YesNo
Dietary habits YesNo
Alcohol YesNo
Socio-economic Yes    No
Occupation and employment YesNo
Income and finances YesNo
Family circumstances YesNo
Housing and accommodation YesNo
Education YesNo
Ethnic group YesNo
Marital status YesNo
Informal support YesNo
Unpaid care YesNo
Health service utilisation Yes    No
Formal health and social care service utilisation – including private care YesNo