Cohort name *

    Acronym *

    Cohort type *
    General population-based cohortsNeurodegenerative disease-specific cohortsRare neurodegenerative condition

    Participant type *
    No diagnosisAt risk diagnosisCondition diagnosed

    If disease-specific *
    Alzheimer's diseaseVascular dementiaFrontotemporal dementiaMotor neurone diseasePrion diseaseParkinson’s diseaseLewy Body diseaseHuntington’s diseaseSpinocerebellar ataxia (SCA)Spinal muscular atrophy (SMA)Mild cognitive impairment (MCI)Subjective memory complaints (SMC) or subjective cognitive decline (SCD)Other/rarer dementias/NDs not listedType of dementia/ND not specified

    Recruitment period *

    Sample size at recruitment *
    0 to 4,9995,000 to 9,99910,000 to 19,99920,000 to 49,99950,000 to 99,999100,000 to 499,999500,000+

    Estimated current sample size *
    0 to 4,9995,000 to 9,99910,000 to 19,99920,000 to 49,99950,000 to 99,999100,000 to 499,999500,000+

    Age at recruitment *
    0 to 910 to 1920 to 3940 to 5960 to 100

    Gender *
    Male OnlyFemale OnlyMale & Female

    Abstract *
    Please provide a short description of the cohort, its key aims and if there was any cohort refreshment. Please include information on the number and frequency of data collection events, type of follow up (e.g. solely through record linkage) and cohort distinguishing features (e.g. availability of information on childhood infection or geographic isolated area).

    Country *

    Institution name *

    Website *

    Principal investigator *

    Contact email *

    Contact telephone number *

    (core support)

    Variables Collected

    Brain related measures Yes    No
    Mental Health YesNo
    Cognitive function YesNo
    Behaviour YesNo
    Neurological YesNo
    Functional rating Yes    No
    Individual psychological YesNo
    Individual physiolgical YesNo
    Caregiver YesNo
    Anthropometric Yes    No
    Height YesNo
    Weight YesNo
    Waist circumference YesNo
    Blood pressure YesNo
    Waist circumference YesNo
    Physical Yes    No
    Cardiovascular YesNo
    Respiratory YesNo
    Musculoskeletal YesNo
    Hearing and Vision YesNo
    Reproductive YesNo
    Biological samples Yes    No
    Blood YesNo
    Urine YesNo
    Saliva YesNo
    Microbiome YesNo
    Cerebral spinal fluid (CSV) YesNo
    If CSF was collected, is biomarker available YesNo
    Other YesNo
    Genotyping Yes    No
    Gene screening YesNo
    Brain imaging Yes    No
    Magnetic resonance imaging (MRI) YesNo
    Magnetic resonance spectroscopy (MRS) YesNo
    Positron emission tomography (PET) – fluorine–18 flurodeoxyglucose (FDG) YesNo
    Positron emission tomography (PET) - amyloid YesNo
    Magnetoencephalography (MEG) YesNo
    Electroencephalogram (EEG) YesNo
    Single photon emission computerised tomography (SPECT) YesNo
    Brain banking Yes    No
    Consent for brain donation YesNo
    Lifestyle Yes    No
    Smoking YesNo
    Physical activity YesNo
    Dietary habits YesNo
    Alcohol YesNo
    Socio-economic Yes    No
    Occupation and employment YesNo
    Income and finances YesNo
    Family circumstances YesNo
    Housing and accommodation YesNo
    Education YesNo
    Ethnic group YesNo
    Marital status YesNo
    Informal support YesNo
    Unpaid care YesNo
    Health service utilisation Yes    No
    Formal health and social care service utilisation – including private care YesNo