Title of cohort


1970 British Cohort Study

Acronym for cohort


BCS70

Name of Principal Investigator - Title


Prof

Name of Principal Investigator - First name


Alice

Name of Principal Investigator - Last name


Sullivan

Address of institution -Institution


UCL Institute of Education

Address of institution - Street address


Centre for Longitudinal Studies, UCL Insitute of Education, 20 Bedford Way

Address of institution - City


London

Address of institution - Postcode


WC1H 0AL

Country


United Kingdom

Website


www.cls.ioe.ac.uk/bcs70

Contact email


[email protected]

Funding source


Core funding from ESRC, co-funding from MRC for age 46 biomedical sweep

Q1a. Please indicate below if your cohort includes or expects to include, incidence of the following conditions?


Neurodegenerative disease in general

Q1b. When are studies on the above condition(s) expected to become possible?


Already possible

Q2a. In a single sentence what is the stated aim of the cohort?


CS70 follows 17,000 people born in Great Britain in one week in 1970 and collects information on physical and educational development, economic circumstances, employment, family life, health, wellbeing and attitudes

Q2b. What distinguishes this cohort from other population cohorts?


CS70 follows 17,000 people born in Great Britain in one week in 1970 and collects information on physical and educational development, economic circumstances, employment, family life, health, wellbeing and attitudes

Q3a. i) Number of publications that involve use of your cohort to date


822

Q3a.ii) Please give up to three examples of studies to date (Principal Investigator, Institution, Title of Study)


SULLIVAN A. and BROWN, M.  (2015)  Reading for pleasure and progress in vocabulary and mathematics.  British Educational Research Journal, 41(6),  971-991. | MARCENARO GUTIERREZ, O, MICKLEWRIGHT, J and VIGNOLES, A.  (2015)  Social mobility, parental help, and the importance of networks: evidence for Britain.  Longitudinal and Life Course Studies, 6(2),  190-211. HAMER, M., YATES, T., SHERAR, L.B., CLEMES, S.A. and SHANKAR, A.  (2016)  Association of after school sedentary behaviour in adolescence with mental wellbeing in adulthood.  Preventive Medicine, 87, 6-10. |

Q3b. If data on research outputs are already available please paste the publication list/other data or provide a link to where these data are publicly available


http://www.cls.ioe.ac.uk/Bibliography.aspx?sitesectionid=647&sitesectiontitle=Bibliography

Q3c. If no research has been done as yet, please explain in a few sentences what information (i.e. research findings) you expect will be gained from the population


Q4a. Study criteria: what is the age range of participants at recruitment? Age in years From:


Birth

Q4a. Study criteria: what is the age range of participants at recruitment? To:


Until death

Q4b. Study criteria: what are the inclusion criteria?


The BCS70 original target sample was all births in England, Scotland and Wales in one week of March 1970. In addition, in advance of the age 5, age 10 and age 16 follow-ups the sample was augmented with immigrants born within the relevant week.

Q4c. Study criteria: what are the exclusion criteria?


N/A

Q5. What is the size of the cohort (i.e. how many participants have enrolled)?


More than 15,000 participants

Q6a. Please describe what measures are used to characterise participants


Information from childhood sweeps: Birth circumstances, birth weight, breastfeeding, general health, child development, specific conditions, disabilities/ special needs, hospital admissions, immunisation, medication, accidents, menstruation, diet, eating problems, exercise, sexual activity, smoking, drink and drugs, behavioural problems, mental health, well-being, personality, locus of control, self-esteem, social judgement, sleeping problems, medical assessments (height, weight, head circumference, audiometry, speech, co-ordination, blood pressure/pulse, vision), cognitive assessments, parental health, parental smoking, parental drinking.| Information from adult sweeps: General health, specific conditions, disability/limitations, menopause, weight, accidents, mental health, well-being, sleep, smoking, alcohol, drug use, diet, exercise, sedentary behaviour, cognition.| Information from current biomedical sweep (Age 46): Height, weight, bodyfat, waist circumference, hip circumference, blood pressure and pulse, grip strength, balance, accelerometry.

Q6b. Are there additional measures for participants with a clinical disorder?


Q6c. Are there defined primary and secondary endpoints (e.g. defined health parameters)?


No

If yes please specify


Q7. What is the study design (select all that apply)?


Prospective cohort| Longitudinal

Q8. Are your cases matched by


Age

Q9a. Does your study include a specialised subset of control participants?


No

Q9b. If your study includes a specialised subset of control participants please describe


Q10a. i) Please enter the data collection start date


01/04/1970

Q10a. ii) Please enter the data collection end date


N/A

Q10a. iii) Is data collection for this study


Data collection ongoing| Data analysis ongoing| Data collection ongoing

Q10b. If data collection is ongoing, are there plans to continue the cohort study beyond the current projected end date?


Q11. Is data collected


Only through the study

Other please specify here


Also through links to medical records and other records

Q12. Is there a system in place to enable re-contact with patients to ask about participation in future studies?


Yes (participants given permission to be re-contacted via PIs)

Q13a. Please give information on the format and availability of data stored in a database (1)


Data summarised in database

% available


95

Q13a. Please give information on the format and availability of data stored in a database (2)


No

% available


Q13a. Please give information on the format and availability of data stored in a database (3)


No

% available


Q13a. Please give information on the format and availability of data stored in a database (4)


No

% available


Other (please specify)


% available


Q13b. Please give information on the format and availability of data held as individual records (1)


Data is held as individual records

% available


95

Q13b. Please give information on the format and availability of data held as individual records (2)


No

% available


Q13b. Please give information on the format and availability of data held as individual records (3)


No

% available


Q13b. Please give information on the format and availability of data held as individual records (4)


No

% available


Please specify language used


English

Q14a. Is data available to other groups?


Yes

Q14b. If data is available to other groups what is the access policy/mechanisms for access?


Apply to PI or co-ordinator at resource| Apply to PI or co-ordinator at resource| National access| International access| Resource has own ethics approval so usually no need for separate external ethics approval

Q15. What data sharing policy is specified as a condition of use?


Data to be made publicly available immediately

Q16a. Are tissues/samples/DNA available to other groups?


Yes

Q16b i) If yes, please describe below:


Living donors: blood| Living donors: DNA| Living donors: blood derivatives

Q16b. ii) In what form are tissues/samples/DNA supplied?


Primary Samples: Stabilised samples (frozen or fixed)| Secondary samples:(derivatives of primary samples)| Secondary samples: plasma| Secondary samples: DNA

Q16b. iii) Is the access policy/mechanism for obtaining samples the same as that for obtaining data (Q14 above)?


No

Q17. Is information on biological characteristics available to other groups?


Yes, for all the cohort

Number of Patients


% of total cohort

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