Principal Investigators

    Professor Sube Banerjee

    Institution

    University of Sussex

    Contact information of lead PI

    Country

    United Kingdom

    Title of project or programme

    C-DEMQOL - Measurement of quality of life in family carers of people with dementia: development of a new instrument for evaluation

    Source of funding information

    Alzheimer's Society

    Total sum awarded (Euro)

    € 413,290

    Start date of award

    01/10/2015

    Total duration of award in years

    2.5

    Keywords

    Research Abstract

    AIM/OUTCOMES
    To generate a new instrument (C-DEMQOL) to evaluate QOL across caring situations, severity and complexity in dementia using a sequential 7-stage process from previous successful dementia QOL development studies.
    METHOD
    S1 ITEM POOL GENERATION
    Based on the stress process model, we will (i) complete a focussed literature review, (ii) complete 40 new in-depth individual qualitative interviews (IIIs) and 4 focus group discussions; and (iii) use our direct access to research datasets to complete construct mapping and generate items.
    S2 INITIAL DEVELOPMENT OF QUESTIONNAIRE
    Analyses of S1 data will be used to generate the conceptual framework and items will be devised, extracted, listed and assessed in 25 carers.
    S3 PRELIMINARY FIELD TESTING
    Testing item response rates and participant acceptability in 120 carers.
    S4 DEVELOPMENT OF INSTRUMENT FOR FINAL FIELD TESTING
    Analyses using modern psychometric techniques to identify the subset of items that form a homogeneous set in respect to the target construct, QOL, and provide most information for measurement of the construct.
    S5 FINAL FIELD TESTING
    In a new sample of 300 family carers, assessed with C-DEMQOL and a package of instruments designed to assess comprehensive health status, functioning and service use of the carer and the person with dementia.
    S6 PSYCHOMETRIC EVALUATION
    To evaluate the psychometric properties of C-DEMQOL inc validity and measurement precision (inc reliability); generation of scoring protocols and norms.
    S7 RESPONSIVENESS TESTING
    Using C-DEMQOL in two funded ESRC studies led by co-applicants.
    The carers will be drawn from the clinical/case registers of the clinical applicants.

    Further information available at:

Types: Investments < €500k
Member States: United Kingdom
Diseases: N/A
Years: 2016
Database Categories: N/A
Database Tags: N/A

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