Name of bioresource/bank
CBC Biotec Biobank
Name of Principal Investigator
Address of institution where award is held
|Institution||Hospices Civils de Lyon|
|Street Address||BP 2251 – 3 quai des Celestins|
|City||LYON Cedex 02|
Contact email (e.g. manager or coordinator)
Q1 What conditions does your resource cover?
Motor neurone diseases
Spinocerebellar ataxia (SCA)
Spinal muscular atrophy (SMA)
Neurodegenerative disease in general
Q2a What DNA collection does your resources hold?
Q2b What cell lines does your resource hold?
Above 1000 distinct cell lines
Q2c What tissue (including post-mortem tissue) does your resource hold?
Q3 Are human tissues/samples/DNA from
Living donors: blood derivatives
Living donors: DNA
Living donors: skeletal muscle biopsy
Living donors: other, please specify below
Post-mortem donors: other (specify)
Q4 Are tissues/samples/DNA from
Healthy individuals/control donors
Q5 Can samples be linked to clinical (phenotypic) information and if so, is this information:
Routinely collected as medical records
In a specific study-associated dataset
Collected as part of a specific clinical trial(s)
Q6 In what form are samples supplied?
Secondary samples:(derivatives of primary samples)
Secondary samples: DNA
Secondary samples: cell lines derived from primary samples
Secondary samples: other types of cell lines
Q7 Are biomarkers/analytes/biological characteristics already measured and the information available for your samples?
In most samples
Q8 What is the status of your tissue/sample/DNA collection?
Q9 What are the rules and procedures for access?
Apply to PI or co-ordinator at resource
Access Committee mechanism
Access to industry
Access for pilot studies permitted
Access restricted to peer-reviewed work
Applicant needs to provide separate external ethics approval
Resource has own ethics approval so usually no need for separate external ethics approval