Title of the cohort

Cohort – Health 2000

Acronym for cohort

H2000

Name of Principal Investigator
Title Research professor
First name Arpo
Last name Aromaa
Address of institution where award is held
Institution The National Institute for Health and Welfare
Street Address Mannerheimintie 166
City Helsinki
Postcode 00330
Country
  • Finland
Website

www.terveys2000.fi

Contact email

pirkko.alha@thl.fi

Funding source
1. The cohort includes, or expects to include, incidence of the following conditions
  • Alzheimer’s disease and other dementias
  • Parkinson’s disease
When studies on the above condition(s) are expected to become possible
  • Already possible
2a. Stated aim of the cohort

The main aim of Health 2000 is to provide an up-to-date comprehensive picture of health and functional ability in the working-aged and aged population by studying the prevalence and determinants of most important health problems and associated need for care, rehabilitation and help.

2b. Features distinguishing this cohort from other population cohorts
3a. i) Number of publications that involve use of cohort to date

305

3a. ii) Up to three examples of studies to date (PI, Institution, Title of Study)
3b. Publication list/link to where data or publications are accessible (if available)

http://www.terveys2000.fi/julkaisut.html#2000

3c. Information (i.e. research findings) expected to be gained from the population cohort
4a. Study criteria: age range of participants at recruitment
Age in years from: 18
To (‘until death’ if applicable): until death
4b. Study criteria: inclusion criteria

A nationally representative sample of 10,000 persons has been drawn of the population aged 18 and over. Targets of the study are general health, major chronic conditions, functional ability and limitations, determinants of health, diseases, functional ability and limitations, health needs and service needs and their satisfaction.

4c. Study criteria: exclusion criteria

none

5. Size of the cohort (i.e. number of participants enrolled)
  • 5,001 – 10,000 participants
6a. Measures used to characterise participants

?

6b. Additional measures for participants with a clinical disorder
6c. Are there defined primary and secondary endpoints (e.g. defined health parameters)
  • No
7. Study design
  • Cross sectional survey
8. Cases matched by
  • Other health assessment (specify) / N/A
  • no matching
9a. Does the study include a specialised subset of control participants
  • No
9b. If yes, description of specialised subset of control participants
10a. i) Data collection start date

31-01-2000

10a. ii) Data collection end date

01-09-2001

10a iii) Data collection for this study is
  • Data analysis ongoing
10b. Plans to continue the cohort study beyond the current projected end date
11. Data collected
  • Through links to other records or registers (such as dental records, police records etc). Please specify
  • morbidity register
12. System in place to enable re-contact with patients for future studies
  • Yes (participants have given permission to be re-contacted via the PIs to ask if they would participate in further studies)
13a. Format and availability of data stored in a database
Language used:
13b. Format and availability of data held as individual records
Language used:
14a. Are data available to other groups

Yes

14b. Access policy/mechanisms for access if data are available to other groups
  • Apply to PI or co-ordinator at resource
  • Access Committee mechanism
  • Resource has own ethics approval so usually no need for separate external ethics approval
15. Data sharing policy specified as a condition of use
  • No requirement to make data publicly available
16a. Are tissues/samples/DNA available to other groups

Yes

16b. i) Description of available tissues/samples/DNA
  • Living donors: DNA
16b. ii) Form available tissues/samples/DNA are supplied in
  • Secondary samples: DNA
16b. iii) Is the access policy/mechanism for obtaining samples the same as that for obtaining data

Yes

17. Is information on biological characteristics available to other groups
  • No

Types: Population Cohorts
Member States: Finland
Diseases: Alzheimer's disease & other dementias, Parkinson's disease & PD-related disorders
Years: 2011
Database Categories: N/A
Database Tags: N/A

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