Title of the cohort

Cohort – Maintaining function and well-being in later life

Acronym for cohort

CFAS Wales

Name of Principal Investigator
Title Professor
First name  Bob
Last name Woods
Address of institution where award is held
Institution Bangor University
Street Address 45, College Road
City Bangor
Postcode LL57 2DG
Country

United Kingdom

Website

http://cfaswales.bangor.ac.uk/

Contact email
Funding source

ESRC
HEFCW

1. The cohort includes, or expects to include, incidence of the following conditions
  • Alzheimer’s disease and other dementias
When studies on the above condition(s) are expected to become possible

2016 – 2025

2a. Stated aim of the cohort

To identify biopsychosocial influences on the development of cognitive impairment and the maintenance of well-being in later life.

2b. Features distinguishing this cohort from other population cohorts

This cohort links in with the CFAS-II study, but includes additional measures relating to social support, bilingualism and resilience.

3a. i) Number of publications that involve use of cohort to date
0
3a. ii) Up to three examples of studies to date (PI, Institution, Title of Study)
3b. Publication list/link to where data or publications are accessible (if available)
3c. Information (i.e. research findings) expected to be gained from the population cohort

Will augment the CFAS-II study, in comparing prevalence and incidence of cognitive impaiment with the CFAS-I cohort fifteen years previously. Will examine influence of cognitive reserve on development of cognitive impairment.

4a. Study criteria: age range of participants at recruitment
Age in years from: 65
To (‘until death’ if applicable): until death
4b. Study criteria: inclusion criteria

All people in defined geographical areas aged over 65, registered with a general practitioner, including those in institutions.

4c. Study criteria: exclusion criteria

Terminal illness. Inability to speak English or Welsh.

5. Size of the cohort (i.e. number of participants enrolled)

1,000 – 5,000 participants

6a. Measures used to characterise participants

AGECAT
CamCog

6b. Additional measures for participants with a clinical disorder

No

6c. Are there defined primary and secondary endpoints (e.g. defined health parameters)

No

7. Study design
  • Prospective cohort
  • Longitudinal
8. Cases matched by
  • Age
  • Sex
9a. Does the study include a specialised subset of control participants

No

9b. If yes, description of specialised subset of control participants
10a. i) Data collection start date

01-08-2011

10a. ii) Data collection end date

31-03-2015

10a iii) Data collection for this study is
  • At the planning stage
10b. Plans to continue the cohort study beyond the current projected end date
11. Data collected

Only through the study

12. System in place to enable re-contact with patients for future studies

Yes (participants have given permission to be re-contacted via the PIs to ask if they would participate in further studies)

13a. Format and availability of data stored in a database
Yes/No % available
Data summarised in database  No
Database is web-based  No
Database on spreadsheet  No
Database is on paper  No
Other (specify)  No
Language used:
13b. Format and availability of data held as individual records
Yes/No % available
Data held as individual records  No
Data is web-based No
Data held on computer based records  No
Data held on cards  No
Other (specify)
Language used:
14a. Are data available to other groups

Yes

14b. Access policy/mechanisms for access if data are available to other groups
  • Access Committee mechanism
15. Data sharing policy specified as a condition of use

Data made publicly available after a specified time point

16a. Are tissues/samples/DNA available to other groups

No

16b. i) Description of available tissues/samples/DNA
16b. ii) Form available tissues/samples/DNA are supplied in
16b. iii) Is the access policy/mechanism for obtaining samples the same as that for obtaining data
17. Is information on biological characteristics available to other groups
  • No

Types: Population Cohorts
Member States: United Kingdom
Diseases: Alzheimer's disease & other dementias
Years: N/A
Database Categories: N/A
Database Tags: N/A

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