Title of the cohort
Cohort – Understanding Society
Acronym for cohort
Name of Principal Investigator
| Title | Professor |
| First name | Nick |
| Last name | Buck |
Address of institution where award is held
| Institution | University of Essex |
| Street Address | Institute for Social & Economic Research |
| City | Essex |
| Postcode | CO4 3SQ |
Country
- United Kingdom
Website
http://www.understandingsociety.org.uk/
Contact email
Funding source
Economic and Social Research Council, Goverment’s Large Facilities Capital Fund, Consortium of Government Departments
1. The cohort includes, or expects to include, incidence of the following conditions
- Neurodegenerative disease in general
When studies on the above condition(s) are expected to become possible
- Already possible
2a. Stated aim of the cohort
A major research study designed to provide valuable new evidence about the people of the UK, their lives, experiences, behaviours and beliefs.
2b. Features distinguishing this cohort from other population cohorts
Understanding Society will every year track the fortunes, attitudes and circumstances of 100,000 people living in Britain. The focus is on the household, looking at how different members of a family relate to each other.
3a. i) Number of publications that involve use of cohort to date
0
3a. ii) Up to three examples of studies to date (PI, Institution, Title of Study)
3b. Publication list/link to where data or publications are accessible (if available)
http://research.understandingsociety.org.uk/publications
3c. Information (i.e. research findings) expected to be gained from the population cohort
4a. Study criteria: age range of participants at recruitment
| Age in years from: | 10 |
| To (‘until death’ if applicable): | until death |
4b. Study criteria: inclusion criteria
Randomly selected household
4c. Study criteria: exclusion criteria
Depending on weighting on household samples, new immigrants in the UK
5. Size of the cohort (i.e. number of participants enrolled)
- More than 15,000
6a. Measures used to characterise participants
6b. Additional measures for participants with a clinical disorder
6c. Are there defined primary and secondary endpoints (e.g. defined health parameters)
- No
7. Study design
- Longitudinal
- Longitudinal
- Household panel survey
8. Cases matched by
- Age
- Sex
9a. Does the study include a specialised subset of control participants
- No
9b. If yes, description of specialised subset of control participants
10a. i) Data collection start date
01-01-2009
10a. ii) Data collection end date
10a iii) Data collection for this study is
- Data collection ongoing
- Data analysis ongoing
10b. Plans to continue the cohort study beyond the current projected end date
- Yes – funding applied for
11. Data collected
12. System in place to enable re-contact with patients for future studies
13a. Format and availability of data stored in a database
Language used:
13b. Format and availability of data held as individual records
Language used:
14a. Are data available to other groups
Yes
14b. Access policy/mechanisms for access if data are available to other groups
15. Data sharing policy specified as a condition of use
- Data to be made publicly available immediately
16a. Are tissues/samples/DNA available to other groups
No
16b. i) Description of available tissues/samples/DNA
16b. ii) Form available tissues/samples/DNA are supplied in
16b. iii) Is the access policy/mechanism for obtaining samples the same as that for obtaining data
17. Is information on biological characteristics available to other groups
- No