Name of Fellow

    Dr Nilufar Ahmed



    Health and Care Research Wales

    Contact information of fellow


    United Kingdom

    Title of project/programme

    Experiences and understandings of dementia among Black, Asian and Minority Ethnic (BAME) Groupsmin Wales: community individual and intergenerational perspectives.

    Source of funding information

    Health and Care Research Wales

    Total sum awarded (Euro)

    € 265,532

    Start date of award


    Total duration of award in years


    The project/programme is most relevant to:

    Neurodegenerative disease in general


    Mental Health | Neurological

    Research Abstract

    This research will explore the experiences and understandings of dementia of people from BAME communities. It will consider: community responses, experiences of people with dementia and their carers, social networks and social support, interactions with formal care, access to services and intergenerational relations. Whilst there is a growing literature on the health needs of BAME older people, research on dementia remains sparse. However, we know that minority groups are underrepresented in dementia services. The existing literature points to lack of awareness about dementia; lack of or late diagnosis; stigma; inappropriate service provision; and assumptions about the caring capacity of extended family networks. Existing research stresses a need to understand the ways in which BAME communities conceptualise and understand dementia in order to provide more relevant services and to train providers.

    The numbers of older BAME people in Wales will grow substantially in the future. This will translate in to higher demand for health services generally and accordingly greater numbers of people with dementia and at risk of dementia in these groups.

    This research will adopt a ‘grassroots’ approach, undertaking community based research in South Wales (Cardiff, Swansea and Newport) working with Community Groups and Services, Third Sector Organisations and Places of Worship. We will undertake focus groups in these settings, exploring issues relating to ageing, health and social needs in general and dementia in particular. Where individuals in these locations identifiy as having dementia, one to one interviews will be arranged to build up more detailed explorations of conceptualisations of dementia and experiences of care. We will also interview younger family members to examine the impact of dementia on intergenerational relations. Where formal care services are involved we will interview care providers to build up a full picture of care provision.

Types: Fellowships
Member States: United Kingdom
Diseases: Neurodegenerative disease in general
Years: 2016
Database Categories: N/A
Database Tags: N/A

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