Name of Resource (to include any acronym)

    Name of Resource

    Irish ALS Research Group

    Name of Principal Investigator - Title

    Prof

    Name of Principal Investigator - First Name

    Orla

    Name of Principal Investigator - Last Name

    Hardiman

    Address of institution -Institution

    Trinity College London

    Address of institution - Street address

    College Green

    Address of institution - City

    Dublin

    Address of institution - Postcode

    2

    Country

    Ireland

    Website

    Contact email

    hardimao@tcd.ie

    Purpose of resource

    Complex genetics of ALS and FTD

    Q1. Is the resource?

    General (e.g. DNA sequence, proteomic data)|Designed for use in clinical neurosciences research

    Please Specify

    Q2. Does the resource specifically provide for any of the neurodegenerative diseases/disease subtypes specified below?

    Motor neurone disease

    Q3a. Is the resource accessible to the research community?

    No

    Q3b. If yes, what procedures and rules apply for access?

    Apply to PI or coordinator at resource

    Q4a. What type of data is provided?

    GWAS & WGS|Deep Phenotype|Spectral EEG|3T imaging|Detailed neuropsychologial assessments

    Please describe

    Q4b. More generally are there other data available through the resource that you think may be useful to researchers in the context of the above conditions?

    Cognitive Function|Motor Function|Pharmacological Function

    Please describe

    Q5a. Is maintenance of this resource dependent on continued funding?

    Yes

    Q5b. If yes, when does the current funding period end?

    01/01/2020

    Q5c. Are there plans to secure further funding beyond this period?

    Yes

    If YES please specify for how long in years

    10

    Q5d. What is the expected lifespan of the resource (in years)?

    Indefinite

    Q5e. Are there other plans affecting future use that it may be useful to know?

    We are part of a number of large Consortia

Types: Bio/Neuroinformatic Resources
Member States: Ireland
Diseases: Motor neurone diseases
Years: 2016
Database Categories: N/A
Database Tags: N/A

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