Title of the cohort

The Swedish National study on Aging and Care in Kungsholmen

Acronym for cohort

SNAC-K

Name of Principal Investigator
Title Professor
First name Laura
Last name Fratiglioni
Address of institution where award is held
Institution Aging Reseach Center
Street Address
City Stockholm
Postcode 113 30
Country
  • Sweden
Website

www.ki-su-arc.se

Contact email

laura.fratiglioni@ki.se

Funding source
1. The cohort includes, or expects to include, incidence of the following conditions
  • Alzheimer’s disease and other dementias
  • Parkinson’s disease
When studies on the above condition(s) are expected to become possible
  • Already possible
2a. Stated aim of the cohort

To trace the changes in health status and detect factors leading to negative health and functional outcomes in the elderly

2b. Features distinguishing this cohort from other population cohorts
3a. i) Number of publications that involve use of cohort to date

4

3a. ii) Up to three examples of studies to date (PI, Institution, Title of Study)
3c. Information (i.e. research findings) expected to be gained from the population cohort
4a. Study criteria: age range of participants at recruitment
Age in years from: 60 +
To (‘until death’ if applicable): until death
4b. Study criteria: inclusion criteria

60 + living in Kungsholmen area at 2001

4c. Study criteria: exclusion criteria

No

5. Size of the cohort (i.e. number of participants enrolled)
  • 1,000 – 5,000 participants
6a. Measures used to characterise participants

As well as biological and genetic date

6b. Additional measures for participants with a clinical disorder

Yes

6c. Are there defined primary and secondary endpoints (e.g. defined health parameters)

Dementia, Alzeimer, Parkinson and other cronical disorders

7. Study design
  • Longitudinal
8. Cases matched by
  • Other health assessment (specify) / N/A
  • Not relevant
9a. Does the study include a specialised subset of control participants
  • No
9b. If yes, description of specialised subset of control participants
10a. i) Data collection start date

01-01-2001

10a. ii) Data collection end date
10a iii) Data collection for this study is
  • Data collection ongoing
  • Data analysis ongoing
10b. Plans to continue the cohort study beyond the current projected end date
  • Yes – funding applied for
11. Data collected
  • Only through the study
  • Through links to medical records
12. System in place to enable re-contact with patients for future studies
  • Yes (participants have given permission to be re-contacted via the PIs to ask if they would participate in further studies)
13a. Format and availability of data stored in a database
Yes/No % available
Data summarised in database  yes  100
Database is web-based
Database on spreadsheet  yes  100
Database is on paper  yes  100
Other (specify)

 

Language used:

Swedish

13b. Format and availability of data held as individual records
Yes/No % available
Data held as individual records
Data is web-based
Data held on computer based records  yes  100
Data held on cards
Other (specify)
Language used:

Swedish

14a. Are data available to other groups

Yes

14b. Access policy/mechanisms for access if data are available to other groups
  • Resource has own ethics approval so usually no need for separate external ethics approval
15. Data sharing policy specified as a condition of use
  • No policy exists
16a. Are tissues/samples/DNA available to other groups

Yes

16b. i) Description of available tissues/samples/DNA
  • Living donors:blood
  • Living donors: blood derivatives
  • Living donors: DNA
16b. ii) Form available tissues/samples/DNA are supplied in
  • Primary samples: Supplied fresh
16b. iii) Is the access policy/mechanism for obtaining samples the same as that for obtaining data
17. Is information on biological characteristics available to other groups
  • No
  • Yes, for all the cohort

Types: Population Cohorts
Member States: Sweden
Diseases: Alzheimer's disease & other dementias, Parkinson's disease & PD-related disorders
Years: 2011
Database Categories: N/A
Database Tags: N/A

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