Title of project or programme
Title of PI Commissioning for long term conditions: hearing the voice of and engaging users
Principal Investigators of project/programme grant
Title Forname Surname Institution Country
Dr Stephen Packham London School of Hygiene & Tropical Medicine United Kingdom
Professor Sally Kendall University of Hertfordshire United Kingdom
Dr Fiona Brooks University of Hertfordshire United Kingdom
Dr Patricia Wilson University of Hertfordshire United Kingdom
Address of institution of lead PI
Institution London School of Hygiene & Tropical Medicine
Street Address Keppel Street
City London
Postcode WC1E 7HT
  • United Kingdom
Source of funding information

Department of Health (DH)

Total sum awarded (Euro)


Start date of award


Total duration of award in months


The project/programme is most relevant to
  • Neurodegenerative disease in general

Parkinson Disease, Dementia, Motor Neuron Disease, Neurodegenerative Diseases

Research abstract in English
Lay summary

The government is encouraging the development of choice for people with long term conditions. The aim of this project to identify the most appropriate ways for commissioners to support and engage with people with long term conditions to develop the most responsive service menu in their locality.

The research will gather information on different approaches used by NHS organisations who fund health care services and how patient groups engage with health and social care agencies to influence patterns of services. In addition to reviewing practice across the UK we will focus on three geographical areas and examine practices of commissioning and purchasing health care for people with long term conditions, approaches to patient and public involvement, patterns of services for people with long term conditions and the activities of local patient and voluntary organisations for people with long term conditions.

It will focus on three groups of patients/conditions – rheumatoid arthritis, diabetes and neurological conditions. We will work closely with local NHS staff and patient organisations to explore the key problems in developing a range of services that patients are able to make choices about. We will track processes and developments over a period of two years to identify what impact patient involvement has on service design and patients. We will then develop guidance for funders that highlights the most effective approaches to supporting, enabling or regulating involvement across health and social care funders and providers to ensure the best outcomes.

In which category does this research fall?
  • Health and social care research

Types: Investments > €500k
Member States: United Kingdom
Diseases: Neurodegenerative disease in general
Years: 2011
Database Categories: N/A
Database Tags: N/A

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