Title of project or programme
Title of PI Needs in Young onset Dementia (Need-YD)
Principal Investigators of project/programme grant
Title Forname Surname Institution Country
dr. Marjolein de Vugt Alzheimer Centrum Limburg Netherlands
Netherlands prof. dr. Raymond Koopmans Alzheimer Centrum Nijmegen
prof. dr Frans Verhey Alzheimer Centrum Limburg Netherlands
prof. dr. Myrra Vernooy-Dassen Alzheimer Centrum Nijmegen Netherlands
dr. Yolanda Pijnenburg Alzheimercentrum VUmc Netherlands
Address of institution of lead PI
Institution Maastricht University / Alzheimer Center Limburg
Street Address dr. Tanslaan
City 01-10-2007
Postcode
Country
  • Netherlands
Source of funding information

Dutch Alzheimer’s Association (Azheimer Nederland)

Total sum awarded (Euro)

450000

Start date of award

Early onset dementia has serious consequences for patients and their family members. Although there has been growing attention for this patient group, health care services are still mainly targeted at the elderly. Specific knowledge of the needs of early onset dementia patients and their families is limited but necessary for the development of adequate health care services and specific guidelines. This research project is mainly targeted at delineating the course of early onset dementia, the functional characteristics and needs of early onset dementia patients and their caregivers, the risk factors for institutionalization and the interaction with the caring environment.
The NeedYD-study (Needs in Young Onset Dementia) is a longitudinal observational study investigating early onset dementia patients and their caregivers (n = 217). Assessments are performed every six months over two years and consist of interviews and questionnaires with patients and caregivers. The main outcomes are (1) the needs of patients and caregivers, as measured by the Camberwell Assessment of Needs for the Elderly (CANE) and (2) neuropsychiatric symptoms, as measured by the NeuroPsychiatric Inventory (NPI). Qualitative analyses will be performed in order to obtain more in-depth information on the experiences of EOD patients and their family members. The results of this study will be compared with comparable data on late onset dementia from a historical cohort.

Total duration of award in months

48

The project/programme is most relevant to
  • Alzheimer’s disease and other dementias
Keywords

Young onset dementia
Needs
Behavioural problems

Research abstract in English

3

Lay Summary
In which category does this research fall?
  • Health and social care research

Types: Investments > €500k
Member States: Netherlands
Diseases: Alzheimer's disease & other dementias
Years: 2011
Database Categories: N/A
Database Tags: N/A

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