Title of cohort
Understanding Society: UK Household Longitudinal Study
Name of Principal Investigator - Title
Name of Principal Investigator - First name
Name of Principal Investigator - Last name
Address of institution -Institution
Address of institution - Street address
ISER, University of Essex, Wivenhoe Park
Address of institution - City
Address of institution - Postcode
Core funding from ESRC, co-funding from UK government funders.
Q1a. Please indicate below if your cohort includes or expects to include, incidence of the following conditions?
Neurodegenerative disease in general
Q1b. When are studies on the above condition(s) expected to become possible?
Q2a. In a single sentence what is the stated aim of the cohort?
UKHLS is the largest household panel study in the world and tracks individuals within families over time and hence is a vital resource for science and policy.
Q2b. What distinguishes this cohort from other population cohorts?
Understanding Society will every year track the fortunes, attitudes and circumstances of 100,000 people living in Britain. The focus is on the household, looking at how different members of a family relate to each other.
Q3a. i) Number of publications that involve use of your cohort to date
Q3a.ii) Please give up to three examples of studies to date (Principal Investigator, Institution, Title of Study)
E. Whitley (Glasgow) (2016) Variations in cognitive abilities across the life course: cross-sectional evidence from Understanding Society: the UK Household| For more publications please see UKDS or our websiteLongitudinal Study, Intelligence http://dx.doi.org/10.1016/j.intell.2016.07.001|
Q3b. If data on research outputs are already available please paste the publication list/other data or provide a link to where these data are publicly available
Q3c. If no research has been done as yet, please explain in a few sentences what information (i.e. research findings) you expect will be gained from the population
Q4a. Study criteria: what is the age range of participants at recruitment? Age in years From:
Q4a. Study criteria: what is the age range of participants at recruitment? To:
Q4b. Study criteria: what are the inclusion criteria?
general population in sampled households representative of UK population, with ethnic minority boosts
Q4c. Study criteria: what are the exclusion criteria?
Q5. What is the size of the cohort (i.e. how many participants have enrolled)?
More than 15,000 participants
Q6a. Please describe what measures are used to characterise participants
Anthropometric and physical biomedical measures: Blood pressure, Weight, Height, Waist, Body fat, Grip strength, Lung function, Blood samples, Biomarker data. Cognitive function. General measures on lifestyle, socio-economics and geography. Self-reported health and prescribed medications.
Q6b. Are there additional measures for participants with a clinical disorder?
Q6c. Are there defined primary and secondary endpoints (e.g. defined health parameters)?
Q7. What is the study design (select all that apply)?
Q8. Are your cases matched by
Q9a. Does your study include a specialised subset of control participants?
Q9b. If your study includes a specialised subset of control participants please describe
Q10a. i) Please enter the data collection start date
Q10a. ii) Please enter the data collection end date
Q10a. iii) Is data collection for this study
At the planning stage| Data collection ongoing| Data analysis ongoin
Q10b. If data collection is ongoing, are there plans to continue the cohort study beyond the current projected end date?
Yes - funding applied for/funding awarded
Other please specify here
Also through links to medical records and other records
Q12. Is there a system in place to enable re-contact with patients to ask about participation in future studies?
Q13a. Please give information on the format and availability of data stored in a database (1)
Data summarised in database
Q13a. Please give information on the format and availability of data stored in a database (2)
Q13a. Please give information on the format and availability of data stored in a database (3)
Q13a. Please give information on the format and availability of data stored in a database (4)
Q13b. Please give information on the format and availability of data held as individual records (1)
Data is held as individual records
Q13b. Please give information on the format and availability of data held as individual records (2)
Q13b. Please give information on the format and availability of data held as individual records (3)
Data held on computer based records
Q13b. Please give information on the format and availability of data held as individual records (4)
Please specify language used
Q14a. Is data available to other groups?
Q14b. If data is available to other groups what is the access policy/mechanisms for access?
Q15. What data sharing policy is specified as a condition of use?
Data to be made publically available immediately
Q16a. Are tissues/samples/DNA available to other groups?
Q16b i) If yes, please describe below:
Living donors: blood| Living donors: DNA
Q16b. ii) In what form are tissues/samples/DNA supplied?
Secondary samples:(derivatives of primary samples)| Secondary samples:(derivatives of primary samples)
Q16b. iii) Is the access policy/mechanism for obtaining samples the same as that for obtaining data (Q14 above)?
Q17. Is information on biological characteristics available to other groups?
Types: Population Cohorts
Member States: United Kingdom
Diseases: Neurodegenerative disease in general
Database Categories: N/A
Database Tags: N/A
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